"For you have delivered my soul from death, my eyes from tears, my feet from stumbling; I will walk before the LORD in the land of the living." Psalm 116:8&9



Tuesday, December 28, 2010

Fear

I was hoping for answers today. I did not get them. Our oncologist was not satisfied with the information we got from the pathology report, so he is sending it off for further testing. We are hoping to know more next week.  

In the past few days, anxiety began creeping into my heart. And with so may questions left unanswered, my imagination has gone to some very dark, very scary places. Tonight, as William and I read the Bible before bed, the Lord used a favorite story of ours to very strongly encourage my weary, fearful soul. Here is an exert from our reading:

Then Jesus turned to his wind-torn friends, "Why were you scared?" he asked.  "Did you forget who I Am? Did you believe your fears, instead of me?"
Jesus' friends were quiet. As quiet as the wind and the waves. And into their hearts came a different kind of storm.
"What kind of man is this?" they asked themselves anxiously.  "Even the wind and the waves obey him!" they said, because they didn't understand.  They didn't realize yet that Jesus was the Son of God.
Jesus' fiends had been so afraid, they had only seen the big waves.  They had forgotten that, if Jesus was with them, then they had nothing to be afraid of.  
No matter how small their boat - or how big the storm.
(The Captain of the storm, the Jesus Storybook Bible)

I am uncertain of just how big this storm we are facing will be. But God loves William more than I do. And He is the one in charge of the storm. So I will trust. God, grant me faith.

Continue to pray with us. Continue to hope. We will continue to fight, no matter how hard it gets. Come, Lord Jesus, come...

Wednesday, December 22, 2010

Waiting

My sweet little William did so well during surgery today! Around 7:30 this morning, the doctors did a biopsy of the tumor that is in his knee. They originally told me it would take about 15 minutes to do the biopsy - it took an hour. So, there I sat in the waiting room, surrounded by friends and family, waiting. And waiting. An hour isn't a long time to wait, but when you are waiting to hear news about a tumor in your baby, each minute takes forever! And then the doctor came out...

The results of the biopsy were inconclusive. They will be doing further testing to determine whether or not the tumor is benign or malignant. So we wait.  

I am a pretty patient person. I wait well. Or so I thought. I have discovered that I wait well for trivial things. But over the last few weeks, as we have waited for Will's cast to come off, waited to get an appointment to see the oncologist, waited for MRI results, waited for surgery, waited for biopsy results, I have learned that I suck at waiting. I want results. I want a plan. I want the world to stop so that we can get William healthy. And every moment that I have to wait makes me feel helpless, fearful and angry.  

As I have waited over the last few weeks, I have been given a glimpse of what is was to wait on the coming Messiah. For Israel, waiting all of those centuries for the promised Savior was painful. Every time they were taken into captivity, every time someone waged war against them, they were reminded of the yet-to-be fulfilled promise of a Savior coming to rescue them. The words of the Christmas carol show us the pain of their waiting so well: 

O come, O come, Emmanuel,
And ransom captive Israel,

That mourns in lonely exile here
Until the Son of God appear.

They mourned while they waited. But their weeping ended - just like the night. Morning broke -  God was faithful. He sent Jesus. And yet, we still wait. Not for the birth of the Messiah, but for the second coming. Romans 8 tells us that all of creation waits eagerly, with groaning for the return of Christ.

So this week, we remember and we wait. We remember the first coming of our Savior, long ago, in the town of Bethlehem, one starry night. We wait, with eager anticipation, for the return of our Savior who promises to rescue us and make all things new. And I wait - for biopsy results and a plan, knowing that no matter what they might be, a sovereign, loving God promises that He will work all things for our good and His glory. May I feel the angst of the need for Jesus and the peace that comes from being His child.

Thank you for all of your prayers and encouragement over the last weeks. They have been a sweet blessing. Please continue to pray and hope with us. I am confident He is able to do far more than we could ever ask.

 

Friday, December 17, 2010

Words

I haven't blogged in a while. I haven't had the words needed to describe what has been going on in our lives.

While there have been no words to write, there have been an abundance of words running around my mind. It has been hard to quiet my mind. Hard to focus. Hard to sleep deeply.

And there have been lots of words spoken to me. Words I don't want to hear. I like to call them "dirty" words. They are not profane or vulgar. They are not R-rated. But they are words that make your heart cringe. Simple words like "concerned" and "abnormal." And more complex words like "growth," "tumor," "oncologist," "MRI," "surgery." It's even worse when these words are spoken about your child.

During the first week of November, William fractured his leg. It was a frustrating experience because there was no event that would explain a fracture. No fall. No traumatic episode. Just unexplained pain and swelling. We saw a doctor and had numerous x-rays. He was put in a cast that went from his thigh to his toes. He was grumpy and in pain. And we waited. We waited for the fracture to heal. After a month, we took the cast off. His fracture was healed, but we discovered a growth in his knee. We were referred to an oncologist who ordered an MRI for the next morning. We met with the oncologist today for the results.

William has a tumor that starts a few inches above his knee, goes down the side of his knee and wraps around the bottom of his knee cap. On Wednesday morning, William will have a biopsy done. We will immediately know if the tumor is benign or malignant. The doctor has a course of action planned for both scenarios. We would appreciate your prayers.

In all of this, the Holy Spirit has impressed upon me the truth about words. When I have no words, He interceded to the Father on my behalf (Romans 8:26). When "dirty" words cause me to fear, He reminds me that Jesus upholds the universe and my son with His word (Hebrews 1:3). And most importantly, He reminds me that my hope is found in The Word, Jesus (John 1:14).








Sunday, December 5, 2010

Traditions: The Christmas Train

It's not Christmas in our house until the Christmas Train is set up. The Christmas Train was originally Barry's mother's. When she passed away, it became a part of our Christmas tradition. It was always Daddy and William's job to set up the train. This year, William and I set up the train. It provides hours of entertainment. More importantly, it makes us smile and brings back sweet memories of special people who are no longer with us.  

Merry Christmas!

Christmas 2007



Christmas 2008




Christmas 2009

Christmas 2010


Thursday, November 25, 2010

Wonderful Deeds

"I will give thanks to the Lord with my whole heart; I will recount all of your wonderful deeds.  I will be glad and exult in you; I will sing praise to your name, O Most High." Psalm 9:1&2

In the weeks before Barry died, the Lord impressed the importance of this verse upon my heart. I made a list of all the things that He had done in our lives and the lives of those we loved during the last five years. It was a beautiful list - a list full of miracles and blessings. Many of the things on the list, while beautiful, came during difficult circumstances. Salvation during cancer, a healthy baby born to friends after the doctors told them there was little hope, etc.  

This Thanksgiving, I sit here making another list. A list of wonderful deeds of the Lord during the last 8 months. I won't share that list with you - it is much too long and much too personal. But I will tell you that out of tragedy, God has showered blessings upon us in abundance. While there have been many tears of pain and grief this year, there have been just as many tears of thanksgiving.  

He is good. He does good. Always. And I am thankful...


Tuesday, November 16, 2010

Not Sleeping In Their Bed - Again

My mom and dad will not be sleeping in their bed tonight. In fact, they haven't slept in their bed for the last several nights. They are sleeping at my great-grandfather's house. His wife passed away last week and they are staying with him to take care of him. They will feed him, clean the house, give him his medicine and begin the process of helping him deal with all the legal and financial issues that come after the death of a spouse. They will cry with him, hold him, read the Bible to him and pray over him.  

I know they will do all of these things because I have seen them do this before for someone else - for me. When Barry passed away, my parents stayed with us for two weeks. They fed me, cleaned my house, got up with the kids each morning and played with them during the day. They went with me to the funeral home, met with the lawyer with me, helped me fill out countless legal and financial forms and helped me pay the bills. They cried with William and I, held us, read the Bible to us and prayed over us.  

Eight months later, my mom still calls me every night to check on me and tell me she loves me. My dad comes over and takes care of the yard. (He even came over to kill a monstrous spider in my herb garden once. Don't judge me - it was huge. You would have called your daddy too if were in your backyard...) They keep my kids once a week so I can have a break and rest. They help me when I have financial questions. They have walked with me through this tragedy in a way that has helped me to feel safe and loved.  And they did all of this while grieving themselves.

There are no words to convey the depth of gratitude I feel towards my parents. They have shown over and over again what it means to truly love someone. They are a beautiful example of humility, sacrificial love and faithfulness. They work harder than anyone I know. And they do all of this, not just for me, but for so many.  

Their actions are not birthed out of obligation. They do not act to earn the favor of man. Their actions are birthed out of a genuine love for Jesus and their desire to see him glorified in the lives of everyone they know. Every time they serve another, they do so with the hope that that person will either come to know Jesus as Savior or come to love and trust Him more deeply.

Tonight will be a long night for my parents. They will get up numerous times to help a widow. There will be little sleep, lots of work and lots of tears. But my great-grandfather will feel deeply loved during one of the hardest seasons of his life. And those of us watching will be challenged to love others sacrificially. Like they do. Like Jesus loves us.

I want to love people like my parents love people. I want to love my children like my parents love their children. I look forward to the day that I can serve them the way that they have served so many.  

Friday, October 15, 2010

Telling William Daddy Died

Note: This is a post I have hesitated to write. It is about an extremely personal and painful moment in my life and in the life of my son. I share it, not to appease your curiosity or to elicit an emotional response or gain attention. In the last several weeks I have interacted with several people who have experienced loss and had to explain death to a young child. While I am not an expert on the subject, I have walked that very difficult road. My hope and prayer in sharing our story is that it would be a help to those who will also have to walk that road.  

I had to tell my three-year-old son that his daddy had died. It was one of the most difficult and painful things I have ever had to do. It isn't something you prepare for, study for or gather advice for. Tragedy strikes and it has to be done. Here is how it played out for our family:

Who: I had to decide two things in deciding the "who" of our story. Who would tell William about Barry's death? Who would be in the room when he was told? To be honest, these were easy decisions for me to make. I strongly felt that it was my job to tell William. I am his mother. In losing Barry, I became solely responsible for his life and his raising. This was a defining moment in his life and I would be the one to walk through it with him. I also strongly felt that it was an extremely personal moment that was for us alone. No one else was allowed to be in the house when I told William. (Yes, that means I asked everyone to leave for an hour.) I wanted us to be alone for two reasons. First, William is extremely social and sensitive. I did not want him to be influenced by others' emotions and reactions. Second, I wanted him to have the freedom to say, feel and react in any way he needed to without fearing what everyone else in the room would do.  

When: Barry died in the morning. I hadn't slept in over 72 hours. So after we finished everything at the hospital, I went to my parents' house to take a nap. I knew I would need sleep to be able to think clearly and control my emotions when I told William. I also knew that once I told him, I would need to be available to answer questions and comfort him. I couldn't just tell him and disappear. So I slept first. Then, that evening, we had the conversation.

Where: I told William in our home. I wanted to tell him somewhere safe and somewhere where I could control the situation. I told him in our living room. It is a "neutral" room for him that he doesn't spend a lot of time in. I chose to tell him there because I did not want to attach negative memories to his bedroom - a place we had spent a great deal of time and effort to make a safe and peaceful place for him or his playroom.  

Why: "Why?" seems like a silly thing to explain, but it is actually the most important. I'll explain the process I went through to tell William in the next section, but why I chose to do it the way I did was this: My goal in everything I do in parenting William is to point him to Jesus. So, in telling William that his daddy had died, my goal was to point him to Jesus. Jesus is where he would find comfort. Jesus is where he would find healing. Jesus is where he could take his questions, fear, anger and pain. Jesus was what would give him hope. And in the coming years, when he looks back on this tragedy, I want him to see Jesus. That Jesus loves him and carried him through this.  

How: While it seemed like time stood still, the actual conversation I had with William only took a few minutes. I used his Bible - the same one we read out of every night. We read the story of Jesus' crucifixion. We talked about that fact that Jesus died - his body stopped working. He did not breath, speak, move, hear, see or think any more. This also meant that, once He died, he no longer felt pain any more. Then I told William that his daddy had died too. I explained that, just like Jesus, daddy's body no longer worked any more and that he was gone. We talked about the fact that Jesus died on the cross to take the punishment for our sins. We are sinners. We deserve to die. When we die, we deserve separation from God because God is perfect. But, because God loves us and wants a relationship with us, He sent Jesus to take our punishment for sin by dying on the cross. I told William that his daddy loved and trusted Jesus with his whole heart. (This was something that William knew from other conversations we had had before Barry died.) Because Jesus had died on the cross and because daddy loved and trusted Jesus, when daddy died he went to heaven to be with God. We talked about heaven and that daddy would stay in heaven with God. And I told him that daddy would never come back to earth with us.  

William listened and cried. I think he cried more because I was crying than out of actual grief. Over the next several weeks and months, we would have this conversation or similar ones over and over again. He asked questions and cried a lot. The above conversation was the beginning point of him understanding death.  

There is a lot I don't remember about that day. I'm sure I made a fool of myself throughout the day. But I remember my conversation with William so clearly. I remember that, in the midst of overwhelming grief and pain, the Holy Spirit spoke through me to bring truth and comfort to my son. I didn't know what to say. But God took care of the words for me. He was so generous and so faithful.  

There is not a set way to tell children about death. The important thing is to love, protect and comfort them while pointing them to truth - to Jesus.  

Father, bless these words and the people reading them. Open our eyes to the truth of your gospel. For those experiencing tragedy and loss, hold them close and comfort them. As we walk with our children through grief, give us strength and wisdom to point them to Jesus. Thank you for Jesus and what He did on the cross. I love and trust you. Amen.